Thursday, January 19, 2012
January 19, 2012
I'm not sure where to start...
I guess here's a good place.... Sometimes I wonder if other parents of children with special needs feel and think the way I do.... every Cardiology appointment Im honestly 100% hopeful that they will look at me and say "Conner is all better, he is cured!! His heart is perfect and he's a healthy, playful, and will live a long life!" I honestly with all my being hope with all my might that they will say that to me. I know they wont, but day dreaming on the way down to his appointment kind of gives me a little more hope. Until they say.... what they said today...Based on the ECHO today, they found that his pressures are in the 70s, they were in the 50s six months ago. He 80-90% systemic vs six months ago he was at around 40%. This means that his conduit is narrowing and its narrowing by the valve. This means that they most likely cannot fix it with a stint (they can but it would make the valve either leaky or leave it completely open. I think that would in turn cause pulmonary hypertension), so the hope is to fix it by ballooning it. If they cannot fix it in the cath lab (by stinting or ballooning) then he will require open heart surgery this year.
Conner has continued to hold his own and do amazing at showing the world how courageous he really is.
Posted by Jessica10283 at 2:42 PM