I guess here's a good place.... Sometimes I wonder if other parents of children with special needs feel and think the way I do.... every Cardiology appointment Im honestly 100% hopeful that they will look at me and say "Conner is all better, he is cured!! His heart is perfect and he's a healthy, playful, and will live a long life!" I honestly with all my being hope with all my might that they will say that to me. I know they wont, but day dreaming on the way down to his appointment kind of gives me a little more hope. Until they say.... what they said today...Based on the ECHO today, they found that his pressures are in the 70s, they were in the 50s six months ago. He 80-90% systemic vs six months ago he was at around 40%. This means that his conduit is narrowing and its narrowing by the valve. This means that they most likely cannot fix it with a stint (they can but it would make the valve either leaky or leave it completely open. I think that would in turn cause pulmonary hypertension), so the hope is to fix it by ballooning it. If they cannot fix it in the cath lab (by stinting or ballooning) then he will require open heart surgery this year.
Conner has continued to hold his own and do amazing at showing the world how courageous he really is.
I cannot utter the proper words I feel right now for you. My heart mommy heart feels for you. These are NOT words you want to hear. I'm so sorry. Please tell me what I can do besides pray. Anything.
ReplyDeleteI'm sorry Jessica I know how hard it is to hear things are not what we want them to be for our baby's. Angel and my prayers are with your family. Conner is such a special little man he will make it through all of this and be a strongerperson for all he makes it through. Believe God is with you though all of this even when it feels like hes not he is always by your side he has chosen us to be special moms to make.though the struggles we face cause he knows were special mom not everyonecould make itthrough these though times. Please remember I am here for you always.you have helped.me.through though.times. and I am here.if.you need anything at all
ReplyDeleteIt is always hard when you hear those words. Been there too many times myself. Logan has had his conduit replaced once already and we will be heading down that road again sometime because he already has a small amount of narrowing below the valve. {{{{HUG}}} All I can do is offer you my prayers and support.
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