tag:blogger.com,1999:blog-17679848303775292012024-03-13T14:56:35.017-07:00L'Amore Vince"Love always wins" it is an Italian quote...The surgeon, Dr Rastelli who designed the procedure that saved our sons life had a poster hanging in his office that said "L'Amore Vince" he had all the children he saved sign that poster. He passed away and now our amazing surgeons such as Dr Gordon Cohen, a man who saved our sons life on several occasions, have used this procedure to continue to save little ones born with broken heartsUnknownnoreply@blogger.comBlogger42125tag:blogger.com,1999:blog-1767984830377529201.post-24391368352909323172013-02-26T18:05:00.001-08:002013-02-26T18:05:26.928-08:00Here are a few pictures:-)Enjoy!! <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-TfxH8fYikmU/US1p3KiTMLI/AAAAAAAAAhU/FYxOy3IQYNM/s640/blogger-image-1352084026.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-TfxH8fYikmU/US1p3KiTMLI/AAAAAAAAAhU/FYxOy3IQYNM/s640/blogger-image-1352084026.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-f7VBPgV6Uw0/US1p2Bt-fjI/AAAAAAAAAhM/MzJsfK2WPug/s640/blogger-image--1869408881.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-f7VBPgV6Uw0/US1p2Bt-fjI/AAAAAAAAAhM/MzJsfK2WPug/s640/blogger-image--1869408881.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-2lPZWfUI2yA/US1p5C3KJqI/AAAAAAAAAhk/K6ok927oJkg/s640/blogger-image-46807920.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-2lPZWfUI2yA/US1p5C3KJqI/AAAAAAAAAhk/K6ok927oJkg/s640/blogger-image-46807920.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-KLI7QcvqhfQ/US1p4HVd3oI/AAAAAAAAAhc/Nd9cwA2PcEg/s640/blogger-image-429626004.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-KLI7QcvqhfQ/US1p4HVd3oI/AAAAAAAAAhc/Nd9cwA2PcEg/s640/blogger-image-429626004.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-snr-RT9TQaQ/US1p1Afts9I/AAAAAAAAAhE/VMwiC4e-pwg/s640/blogger-image--1779732960.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-snr-RT9TQaQ/US1p1Afts9I/AAAAAAAAAhE/VMwiC4e-pwg/s640/blogger-image--1779732960.jpg" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-78055330263991834952013-02-17T13:06:00.001-08:002013-02-17T13:06:25.046-08:00Pictures! <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-zms0dJrWRj8/USFGSr3bF0I/AAAAAAAAAgk/Iqbm_Oo_Rvo/s640/blogger-image--204301526.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-zms0dJrWRj8/USFGSr3bF0I/AAAAAAAAAgk/Iqbm_Oo_Rvo/s640/blogger-image--204301526.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-T_eAn-pKMIs/USFGL11k89I/AAAAAAAAAf8/O57HTMvdDTE/s640/blogger-image-1963419927.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-T_eAn-pKMIs/USFGL11k89I/AAAAAAAAAf8/O57HTMvdDTE/s640/blogger-image-1963419927.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-LwT60oiV9nE/USFGINeSJFI/AAAAAAAAAfk/fsNnvBT7OrM/s640/blogger-image--539654295.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-LwT60oiV9nE/USFGINeSJFI/AAAAAAAAAfk/fsNnvBT7OrM/s640/blogger-image--539654295.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-CAt9zILxtj0/USFGD4NymrI/AAAAAAAAAfM/gEX6Qi4BT6k/s640/blogger-image-1720151018.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-CAt9zILxtj0/USFGD4NymrI/AAAAAAAAAfM/gEX6Qi4BT6k/s640/blogger-image-1720151018.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-cxbnSqls5oQ/USFGT4KEkBI/AAAAAAAAAgs/HH_pIL9E_fw/s640/blogger-image-1286176341.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-cxbnSqls5oQ/USFGT4KEkBI/AAAAAAAAAgs/HH_pIL9E_fw/s640/blogger-image-1286176341.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-UA8tihwwebU/USFGNAfZWdI/AAAAAAAAAgE/DYAuRaIU96Q/s640/blogger-image-1644462354.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-UA8tihwwebU/USFGNAfZWdI/AAAAAAAAAgE/DYAuRaIU96Q/s640/blogger-image-1644462354.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-_N1fVrElcg4/USDWy2gQs5I/AAAAAAAAAeI/gi3zJE5yj-U/s640/blogger-image--1707413685.jpg" imageanchor="1" style="margin-left: 1em; 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text-align: center;"><a href="https://lh4.googleusercontent.com/-xkaMP7bXPOs/USFGCuvMBAI/AAAAAAAAAfE/i8Oy1aBxdZ4/s640/blogger-image--2067515112.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-xkaMP7bXPOs/USFGCuvMBAI/AAAAAAAAAfE/i8Oy1aBxdZ4/s640/blogger-image--2067515112.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-j9wxY--l47E/USFF-n0Tp7I/AAAAAAAAAes/4zPK8OFIixU/s640/blogger-image--126962678.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-j9wxY--l47E/USFF-n0Tp7I/AAAAAAAAAes/4zPK8OFIixU/s640/blogger-image--126962678.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-AuEthfzvYQo/USFGJBRJ35I/AAAAAAAAAfs/1L1hMmGI8oU/s640/blogger-image-1355504504.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-AuEthfzvYQo/USFGJBRJ35I/AAAAAAAAAfs/1L1hMmGI8oU/s640/blogger-image-1355504504.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-UCBaf_XatHM/USFF_4Hya6I/AAAAAAAAAe0/2qC_Ti9OUWM/s640/blogger-image-1547699599.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-UCBaf_XatHM/USFF_4Hya6I/AAAAAAAAAe0/2qC_Ti9OUWM/s640/blogger-image-1547699599.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-CPkS3np2MfU/USFGE1koqMI/AAAAAAAAAfU/T4oHepPxn6s/s640/blogger-image--1701725206.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-CPkS3np2MfU/USFGE1koqMI/AAAAAAAAAfU/T4oHepPxn6s/s640/blogger-image--1701725206.jpg" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-83036285515197252332013-02-17T04:59:00.001-08:002013-02-17T04:59:10.778-08:00Busy busy busy!It's been awhile since I updated you all! Boy has our calendar been filled! Dentist appts, doctor appts, school functions, more dentist appts, clean this, clean that. Oh the joys of motherhood! I wouldn't trade it for anything... I sure love these boys with every ounce of my being <3 I'm not even sure where to begin with this update lol I guess lets start with January... Note to self, update more often! <br />
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Lets begin, shall we? <br />
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January, oh January... sigh... It was a crazy, hectic month to say the least!<br />
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Leo, Alex and Conner are all doing really well! <br />
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Leo is doing better in school, the beginning of the year was a bit bumpy for him but I think he is back in the swing of things! We are for sure stepping into the preteen years, and lets just say I'm glad I have boys! Thankfully nothing medical to report about Leo! I can't BELIEVE he is going to be 11 this year... MIDDLE SCHOOL next year!! WHERE does the time go?! Leo has been doing well over all but struggling with some normal preteen stuff, prayers for him would wonderful! :-) <br />
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Mr. Alex... My sweet handsome little actor! He has hit a rough patch and is currently struggling a bit in school but I think I have organized a good plan for him! I'm sure he will do just fine but if you could him in your prayers that would be great! He is losing all his baby teeth! It's so crazy adorable! I'm going to be taking Alex in for an eye exam because he has been getting headaches here and there again... But for now he has a doctors appointment on Monday. This last week Alex was "Owl of the Week"! We decorated a poster board and I went into his class and read two stories to all his friends :-) the. Alex and I handed cookies out to all his classmates! That's one of those memories ya hope stays with them ya know? <br />
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Conner had his eye appointment and come to find out his vision has gotten worse. Well, his prescription changed from +4.5 in the left to +5.5 and in the right it went from +5.5 to +6.5. She said that this doesn't necessarily mean his vision has gotten worse per se it just means that he is having to work harder to makes his eyes do what they are suppose to do and that he could still be seeing 20/20... Not sure how much of that I believe... But I guess all we can do is keep doing what we are doing in that department. Conner has t had a cardiology appointment since October :-) this just means the doctors are pleased with how Conner is doing. His next appointment is scheduled for March 28 and that point he will have a comets work up, please keep him in your prayers! 1/25/13 marked two years post op for him! In September he had Cardiac Cath and at that time they placed a stent in his conduit because it was narrowing. They told us that it would probably buy about a year MAYBE two... This means it's right around the corner folks :-( Conner is FULL of energy and learning his manners right now :-) he likes to run down the hall turn around and say "momma say run fast!" I say "Run FAST!" He the runs back down the hall making swooshing noises (((<3))) warms the heart... He is doing somersaults and jumping off the ground with both feet :-) he tries so hard every day to be a big boy! He had his first dentist appointment recently... (Please before you judge note that Conner had severe oral aversions for a very long time due to NG tubes, breathing tubes and cameras being shoved down his throat countless times during the first year of his life so we thought it best to wait it out until he had less of an aversion to people being near his mouth) I took good care of his teeth but apparently due to all the medicines he has been on in the past his enamal is weaker than it should be... He has three cavities... Or spots that look like they might be cavities. I was crushed, I instantly welled up and started crying lol sigh... I felt awful! Anyways they told me it was nothing I did and that it was likely because al the medication he has had to be on. Now I'm waiting to get an appointment with Children's dentistry because Conner will have to be sedated to have his cavities filled. And last but not least, Conner is being evaluated for the special Pre school program that is for children who are developmentally behind in some areas and because of Conners medical history the birth to three program he is in suggested that we have him evaluated. So far in some of the tests he has really surprised me! But in other areas I have some concerns but we will cross that bridge when and if we have too! <br />
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Well friends and family, I guess that's all for now! <br />
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I'm off to set a reminder on my phone to do updates more often! <br />
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I'm also posting some pictures! Now, be aware there aren't very many pictures of Leo because he doesn't like his picture taken very often :-/ sigh...<br />
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Much love,<br />
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Jessica <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-ufTtjjI27e0/USDT3iUvp5I/AAAAAAAAAcc/18DzHmBovbs/s640/blogger-image--1986204174.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-ufTtjjI27e0/USDT3iUvp5I/AAAAAAAAAcc/18DzHmBovbs/s640/blogger-image--1986204174.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-iblI7uAfNYA/USDTuPqXh7I/AAAAAAAAAbk/g97Nl2rinwY/s640/blogger-image--1476469718.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-iblI7uAfNYA/USDTuPqXh7I/AAAAAAAAAbk/g97Nl2rinwY/s640/blogger-image--1476469718.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-JPnK3vPRJOc/USDUBiy1S1I/AAAAAAAAAdk/JyYeERaT7RM/s640/blogger-image-1052269005.jpg" imageanchor="1" style="margin-left: 1em; 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margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-chkC3iWKLAw/USDT7xJzyyI/AAAAAAAAAc8/vq0D67C_S2Q/s640/blogger-image--1144593405.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-8KVxg_6k48Q/USDT4nBBE9I/AAAAAAAAAck/lAWtP0Q26WI/s640/blogger-image-68071817.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-8KVxg_6k48Q/USDT4nBBE9I/AAAAAAAAAck/lAWtP0Q26WI/s640/blogger-image-68071817.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-Jpn-A15NGAs/USDTxAuSEaI/AAAAAAAAAb8/kk9aZjIworM/s640/blogger-image-183619221.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-Jpn-A15NGAs/USDTxAuSEaI/AAAAAAAAAb8/kk9aZjIworM/s640/blogger-image-183619221.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-SeXVRHfsW1k/USDT1zVAwCI/AAAAAAAAAcM/V-NZ6SCN7NM/s640/blogger-image--1383496427.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-SeXVRHfsW1k/USDT1zVAwCI/AAAAAAAAAcM/V-NZ6SCN7NM/s640/blogger-image--1383496427.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-uNM5QlgH-DY/USDT-ZIPj2I/AAAAAAAAAdM/tg81sMwWxSo/s640/blogger-image-1892812089.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-uNM5QlgH-DY/USDT-ZIPj2I/AAAAAAAAAdM/tg81sMwWxSo/s640/blogger-image-1892812089.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-nBYwPEmM2BM/USDTvPIvr0I/AAAAAAAAAbs/GSXF2OuW5hE/s640/blogger-image--158858327.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-nBYwPEmM2BM/USDTvPIvr0I/AAAAAAAAAbs/GSXF2OuW5hE/s640/blogger-image--158858327.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-wxfMO-9MPrg/USDT_gRvLyI/AAAAAAAAAdU/zKLgtVAWXxQ/s640/blogger-image--789770282.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-wxfMO-9MPrg/USDT_gRvLyI/AAAAAAAAAdU/zKLgtVAWXxQ/s640/blogger-image--789770282.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-tAM-_-Et15k/USDUARX5iOI/AAAAAAAAAdc/AnQm3lW8Ehs/s640/blogger-image-2136926768.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-tAM-_-Et15k/USDUARX5iOI/AAAAAAAAAdc/AnQm3lW8Ehs/s640/blogger-image-2136926768.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-sR9crMGMB84/USDTtItVBHI/AAAAAAAAAbc/uCP4wfUS5MM/s640/blogger-image-1857770414.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-sR9crMGMB84/USDTtItVBHI/AAAAAAAAAbc/uCP4wfUS5MM/s640/blogger-image-1857770414.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-eflb9U-j9lY/USDTyJ3bLqI/AAAAAAAAAcE/mi5-6RH1ufY/s640/blogger-image--826935685.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-eflb9U-j9lY/USDTyJ3bLqI/AAAAAAAAAcE/mi5-6RH1ufY/s640/blogger-image--826935685.jpg" /></a></div> <br/><br/><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-3FF_r8fMGMo/USDT5pdVmgI/AAAAAAAAAcs/vNGnLwZqMQU/s640/blogger-image-1626656493.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-3FF_r8fMGMo/USDT5pdVmgI/AAAAAAAAAcs/vNGnLwZqMQU/s640/blogger-image-1626656493.jpg" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-80918014365254289842012-10-02T06:49:00.001-07:002012-10-02T06:49:26.507-07:00Happy Birthday to me!Today is my 29th birthday! Wow! 29! To celebrate my birthday today (and I got this wonderful idea from Alex' kindergarten teacher from last year) I'm going to do random acts of kindness today! I'm also asking that everyone who would like to celebrate my birthday today with me if you could all do at least one random act of kindness! This is the makings of a wonderful day for everyone! Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-28970378799823451752012-09-20T21:33:00.001-07:002012-09-20T21:33:27.457-07:00Cath lab tomorrow morning9/21/12-cath lab to place stent. It begins at 7:15am. Please keep Conner in your prayers.... Thank you Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-46316559307806613602012-06-23T12:10:00.001-07:002012-06-23T12:10:06.510-07:00Conner loves to color<div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-Mefset0niQM/T-YUjR5IPmI/AAAAAAAAAbM/LEXb9UmLRtc/s640/blogger-image-33590721.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-Mefset0niQM/T-YUjR5IPmI/AAAAAAAAAbM/LEXb9UmLRtc/s640/blogger-image-33590721.jpg" /></a></div>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-1767984830377529201.post-8030107721110827182012-06-07T02:57:00.001-07:002012-06-07T02:57:16.343-07:00Conner isn't feeling well...Ugh! Isn't it suppose to be Summer or something?!?! The time of year when we don't have to worry as much about virus'! Conner woke up from nap yesterday afternoon with a fever of 101.3. I gave him some Tylenol and he seemed a lot better but now... At 2:43am his fever is back reaching almost 102. I'm certain this is a virus because of some of the other symptoms.... He had a bit of a blue spell, and was breathing hard and grunting. Immediately I'm thinking it's his conduit from the Rastelli procedure he had last January. Or maybe he has some sort of an infection from cath lab on the 18th.... But then the logically side of my brain wakes up and says HELLOOOO BIRTHDAY PARTY LAST WEEKEND! Sigh... It happens. (SO thankful our new family addition Tyler wasnt there (he is Conners new baby cousin) newborns need to just stay healthy :) Poor Lilly isn't feeling well either so please keep her in prayer too... Conner has had some higher than normal heart rates since this fever started... It's gotten up to 130 but don't panic that's almost considered too fast but within the normal range.... sort of. His breathing is also a little fast too :-( considering what happened last January... Fevers really worry me. Could you all keep Conner and Lilly in your prayers (his friend since birth) she doesnt have any heart conditions but she does have cystic fibrosis and colds can get bad for her too. Thank you all for the prayers! Also,Conner has a cardiology appointment on June 14 prayers that it all goes well please! Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-1767984830377529201.post-54199431191911679372012-05-28T15:20:00.001-07:002012-05-28T15:20:58.547-07:00Missing kittyPico (Leo's new cat) has gone missing! We think he got spooked by the fireworks last night and then the rain and wind this morning. I have been searching for him all day.... Please pray he comes back! Thank you! Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-86566546477218070952012-05-18T19:55:00.001-07:002012-05-18T19:55:00.576-07:00Mini update...Conner is a little cranky but ate dinner and is now playing with his cards. Okay so today we came here with the hopes of them being able to fix the narrowing and make it 12mm again (it was at 4mm) if they were able to get it back to 12mm we may have been able to wait another 3-5 years for surgery. He was only able to get it to 6-8 mm. We have to come back in 3 months, they will take a look and possibly put a stent in which will buy us one year before surgery. If they decide that a stent will not work he will have open heart surgery. This is heartbreaking to say the least... Please continue to keep him in your prayers.... Thank you Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-37006273172633739672012-05-18T14:17:00.001-07:002012-05-18T14:17:00.680-07:00Post cath ConnerJust talked with the dr, Conner did well. They were able to open the conduit, from 4mm to between 6-8 still not as wide as they need it to be, but better. They want it be around 12 mm He has to have an echo in 3 months and then they will discuss either putting in a stint or replacing the conduit, the stint would give him another year at most, if it's an option.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-45648081921224807432012-05-16T09:00:00.001-07:002012-05-16T09:00:25.079-07:00Conner is having cath lab on Friday at 7:15 amPlease flood the Heavens with prayers for Conner as we rapidly approach FRIDAY.... As most of you know he will be having a balloon septostomy on "the take off of his conduit" (whatever that means) please prayer for strength and fast healing that the procedure works and the pressures in his heart drop to within normal range. That the right side of his heart gets smaller and within normal range. Prayers for NO INFECTION would be wonderful too. Prayers for this procedure to work with no complications... Thank you everyone...Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-79335754923598319422012-04-17T17:19:00.000-07:002012-04-17T17:19:24.519-07:004/17/12These last few days have been hectic, scary and eye opening to say the least. On Friday my step mom Kerry had surgery on her shoulder, on Saturday she had a small heart attack and ended up in the ICU for the night. She is doing much better now and was discharged on Monday... They told me if we had waited much longer...we would have lost her. Needless to say that was scary. I have been helping get things in order for my dad and Kerry so that my dad can keep working and Kerry can just focus on healing and getting better. My dad wasn't too happy with me today when I got there and I threw the half eaten chocolate cake that was on the counter, away... he said "Hey I was gonna eat that!" I said "I know, and now you arent". We ALL need to focus on eating healthy and getting active and cutting out alot of sugar would be a good place to start! Who is with me? Cut your sugar intake in half and go from there! Walk one day a week and next week two days a week? The following week walk three days? Any suggestions from anyone out there? :)<br />
<br />
And moving right along....<br />
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Yesterday, my niece Angel (well she isnt technically my niece anymore, but to me she will always be my niece) text me to tell me that she was diagnosed with Papillary Thyroid Carcinoma.... (Thyroid Cancer) its the easiest cancer to deal with, but my heart breaks that she has been through so much in her life. She will get through this a stronger young lady but if you would all keep her in Prayer that would be wonderful. And since we are on the subject, we all know I have Graves Disease.... well they found some new and bigger lumps on my thyroid. Im going in for a biopsy on April 24... Prayers for me would awesome as well! :)<br />
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Today on my way home, I got the call.... the call asking which day works best for Conner's cath lab... I spit it out as fast as I could before I just hung up on her. "I spoke to Dr Johnston he told me Tuesdays or Fridays.... we decided Friday May 18 would work best for us." And then she said "thats perfect......" and then lost me in my moment of racing thoughts of all the risks to heart catheterization.... I really wish my sweet boy could have a normal life and not have to go through all this. This heart cath will either fix the problems with the pressures in Conner's right heart, or tell us he needs open heart surgery to replace the conduit. Im feeling mostly optimistic about the procedure but it still terrifies me that my son will be sedated, intubated, and have yet another procedure... Can everyone please keep Conner in Prayer?<br />
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I will conclude this entry with this....<br />
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I have learned so much in my life, and I know I still have my entire life ahead of me. I have met <i>many</i> wonderful people in this journey, and I'm sure I will meet many more. I have also said goodbye to many people, and honestly thinking about it.... I think that was good thing. I have learned that not everyone thinks the same and that is okay. I have learned to embrace what was once my biggest fear. I have shed many tears and said many prayers for children that have earned their Angel wings... This life is different, this life is scary... but I have ALSO learned to focus on the good stuff! I have learned to "Cross that bridge only if I have too". I have learned to focus on the present.... SO when life is getting you down... Remember this, there are good and wonderful things happening all around you take time to stop and find those good and wonderful things. They will make you smile :) Don't waste your time on things that, simple put... do not matter. Focus on having good people and a good environment around you at all times, this will also make you smile! Did you know that it takes less muscles to smile than it does to frown? I want to have happy wrinkles when I grow up dont you? Find things to smile about!<br />
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Much love,<br />
JessicaUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-47202088415975327312012-04-13T08:47:00.001-07:002012-04-13T08:47:20.110-07:00Old table Beautified!I took my old table and put my kids art projects in it with Mod Podge and then varnished it. Once all that was done drying I laid a piece of Plexi Glass on it and VIOLA! It's been beautified! <div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-XVHjgdzOq6Q/T4hKd2Nx8KI/AAAAAAAAAaM/6GNWvKCrtj8/s640/blogger-image-616312315.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-XVHjgdzOq6Q/T4hKd2Nx8KI/AAAAAAAAAaM/6GNWvKCrtj8/s640/blogger-image-616312315.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-x8SzaebmVCU/T4hKeTAMGKI/AAAAAAAAAaU/leSkFJLJXxk/s640/blogger-image-1359257663.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-x8SzaebmVCU/T4hKeTAMGKI/AAAAAAAAAaU/leSkFJLJXxk/s640/blogger-image-1359257663.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-4H6GOdei5YE/T4hKenLZeFI/AAAAAAAAAac/1gNeBTfDe2g/s640/blogger-image-1701713067.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-4H6GOdei5YE/T4hKenLZeFI/AAAAAAAAAac/1gNeBTfDe2g/s640/blogger-image-1701713067.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-IMVdZRWE-Ys/T4hKe_w6OUI/AAAAAAAAAak/YYvROAKZ7DQ/s640/blogger-image--1334146503.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-IMVdZRWE-Ys/T4hKe_w6OUI/AAAAAAAAAak/YYvROAKZ7DQ/s640/blogger-image--1334146503.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-S3zK35vF-HQ/T4hKfR0s1UI/AAAAAAAAAas/GonOud8nPGM/s640/blogger-image-392572303.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-S3zK35vF-HQ/T4hKfR0s1UI/AAAAAAAAAas/GonOud8nPGM/s640/blogger-image-392572303.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-9a-7cXfIQjw/T4hKftASHTI/AAAAAAAAAa0/2tms7hJlg2E/s640/blogger-image--1488329770.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-9a-7cXfIQjw/T4hKftASHTI/AAAAAAAAAa0/2tms7hJlg2E/s640/blogger-image--1488329770.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-m8R2a0dDm0U/T4hKhZP-b3I/AAAAAAAAAa8/cUytkojQ9HA/s640/blogger-image-533844452.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-m8R2a0dDm0U/T4hKhZP-b3I/AAAAAAAAAa8/cUytkojQ9HA/s640/blogger-image-533844452.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-BKFLKiaYS2A/T4hKhiJ0BAI/AAAAAAAAAbE/p_Lr9LwhUzM/s640/blogger-image-668808450.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-BKFLKiaYS2A/T4hKhiJ0BAI/AAAAAAAAAbE/p_Lr9LwhUzM/s640/blogger-image-668808450.jpg" /></a></div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-1767984830377529201.post-81774449918298869422012-04-12T16:03:00.000-07:002012-04-12T16:03:18.714-07:004/12/12Okay folks, the verdict is in! Im not sure if I should celebrate or cry? So I guess the verdict isnt in? Well, Im honestly so happy with these ECHO results! Conners ECHO is essentially the same as it was in January, with a few numbers a little higher then they were last time. (Im talkin like from a velocity of 4.4 in January and now its a velocity of 4.6) All in all his heart function is good! This is where I get confused and feel like I should just lay down and cry.... the valve on the conduit seems a little thicker then it did last time so it may have some calcium deposit on it.... but you know how it goes with ECHO. He will be going in for Cath Lab in May. We are hoping no later than May 18. The goal for this Cath Lab would be to get accurate numbers and to balloon open the narrowing. Please keep Conner in Prayer :) Vitals were all good! Blood Pressure was 96/58 pulse 103, Pulse Ox 100%, he weighs 11.28 kilos (up from 10.78 kilos in January) he is 83 cm long, (up from 82.2cm). They told me not to worry too much about his weight because (too much weight isnt good for anyones heart) His amazing heart is doing just what he needs to do to keep my baby alive and well...he is growing very well! I almost forgot!!! We are allowed to move Conner's propranolol doses out more! He was having it every 8 hours but now we can go to every 12 hours!<br />
<br />
And now for the stuff that REALLY matters.....<br />
<br />
Conner has begun to enjoy the great outdoors, he LOVES to be outside! He likes to explore the entire park!!! A few days ago it was a BEAUTIFUL day outside so I decided to take Conner to the park while Leo and Alex were at school. He saw a dog at the other end of the soccer field he gasps happily, points his chubby little fingers and yells in his cute little voice "Goggy!" (As we all know that means doggy) And then he decides he wanted to play with the doggy, he proceed to walk/run... well it was more of a jog really... 3/4 of the Soccer field (of course I was right behind him) and the entire time he saying "Goggy! Goggy! Goggy!" With my redirection, we never made it all the way to the dog. It was leashed and with its owner but ya just never know.... We explored more, he saw little purple flowers and daisies for the first time ever! ( I will be posting pictures from my phone) Every time he wanted to get down a hill in the park (ya know those small hills nothing too big) he would turn and around lay on his belly and scoot backwards down the hill... I thought it was the cutest thing! We are working on him holding my hand, its working but he is SO independent and VERY determined...When its nap time or bedtime he is very specific about what he wants... blanket, binky, monkey, cup and momma or daddy cuddling with him. He for some reason has to have the pressure of my cheek on his forehead or have his hand resting on my face to go to sleep. I think he knows what his little body went through.... he has an appreciation for life like I have never seen before!<br />
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Leo has really taken on the big brother role and loves his younger brothers to pieces! Alex and Leo argue alot like normal sibling rivalary stuff we are working on them learning how to problem solve together... a work in progress but so far so good. He is VERY protective of Conner and Alex, more so Conner because Alex is "older than Conner" Monday, Leo decided he was "sick" and came home early from school. (He didnt even walk in the building) When I asked him " Leo so why did you not want to go to school" he slipped up and said " Because I just didnt feel like going to school" I said "Oh....do you mean you are sick and thats why you came home early?" He said "Uh...Yeah" I said "Okay well sick boys who stay home from school stay in bed sleeping or reading" (Im trying to instill a good work ethic ya know?) I love how clever he is! He really is the sweetest boy... He is doing GREAT in school! He went from reading and comprehending at a rate of I believe 58 words per minute at the beginning of the school year and now he is at 118 in January. The other day when I picked them up after school we were walking to our car and the Principle stopped us and looked directly at Leo and said " Leo I want to thank you for being such a good friend to Christopher...he really needs a good friend like you" That was an Im doing something right moment! Im SO proud of him! He is really an amazing little guy who loves laughing and being silly....<br />
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Oh Alex, my sweet little character.... he is also doing awesome! He is so curious about everything around him! He has for some reason taken on the interest of cooking in the kitchen with me again. LOL I love this! He is my mommas boy for sure! Oh who am I kidding I have three mommas boys! LOL Alex and his classmate Zenith (a therapy dog) were pictured in the newspaper here in our local town! Zenith has really helped Alex I think....and for those of you who are wondering... no Alex is not in Special Education. Zenith is his teachers dog and she brings him to class with her.... here is a link where you can see the picture of Alex and Zenith and if you want you can vote for Zenith after reading the story:<br />
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<a href="http://www.herodogawards.org/vote/?nominee=88985568#">http://www.herodogawards.org/vote/?nominee=88985568#</a><br />
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Alex is doing great in school! He is learning how to do math he knows most of his letters and letter sounds. He is great at math and he has his "bad" days at school when gets distracted in class but they are getting fewer and fewer apart. I have never heard him complain of anyone making fun of him or anything so it seems as though he gets along great with everyone! All his classmates know me too lol they all say "Hi Alex' mom!" They cant seem to remember my name haha I think its just easier to remember one name.... Alex has been very attatched to me lately and I have to say I have no problem with that whatsoever! Before spring break Alex was very set on getting a mohawk.... I was very set on him NOT getting a Mohawk! We settled with a Faux hawk. (Posting Pictures from my phone)<br />
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Easter was great! We went to church......I learned alot that day :) Im excited to return this Sunday! After Church we had our normal Easter routine... well sorta.... we werent able to go to Grandma Jills this year because our car is acting up. Other than that Easter was great! Conner LOVED looking for eggs! Alex found lots eggs and one golf ball... who by the way doesnt like collared shirts lol all day he was saying "MOM I dont like this shirt!" Leo actually liked wearing his suit! I REALLY thought it would be the other way around lol! (Posting Pictures from my phone)<br />
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I found this AWESOME quilt on Pinterest.com<br />
<a href="http://starsandsunshine.com/2011/09/11/tree-quilt/comment-page-1/#comment-381">http://starsandsunshine.com/2011/09/11/tree-quilt/comment-page-1/#comment-381</a> <br />
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Well since it has a heart on it (like a carved heart) I made one for Conner. Then I decided to make more! Im going make Leo and Alex one too! Here is the picture of the one I made (Just finished it last night) this isnt a very good picture....but I hope you can see it okay.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/-FTBtOpPoZK4/T4degJ-C1OI/AAAAAAAAAaE/0bNOuXABYD0/s1600/connertreeblanket.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://1.bp.blogspot.com/-FTBtOpPoZK4/T4degJ-C1OI/AAAAAAAAAaE/0bNOuXABYD0/s320/connertreeblanket.jpg" width="239" /></a></div><br />
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Sorry for the long update but I dont get on the computer very often and its hard to update from my phone lol well not hard it just takes longer.... I hope all is well with everyone! Heart hugs all around xoxo ~JessicaUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-57104596981876380722012-04-12T15:56:00.001-07:002012-04-12T15:56:35.308-07:00<div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-JFzoN7iQ6ZU/T4ddllQ8lnI/AAAAAAAAAY0/Y3HYic8HQeM/s640/blogger-image--1027225099.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-JFzoN7iQ6ZU/T4ddllQ8lnI/AAAAAAAAAY0/Y3HYic8HQeM/s640/blogger-image--1027225099.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-U8yomKxsDQA/T4ddmDd4VhI/AAAAAAAAAY8/Wd4O1OpEx2g/s640/blogger-image-475101296.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-U8yomKxsDQA/T4ddmDd4VhI/AAAAAAAAAY8/Wd4O1OpEx2g/s640/blogger-image-475101296.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-y3BzgT0CowE/T4ddmaICjTI/AAAAAAAAAZE/GHIOcd2dJ3g/s640/blogger-image--849100683.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-y3BzgT0CowE/T4ddmaICjTI/AAAAAAAAAZE/GHIOcd2dJ3g/s640/blogger-image--849100683.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-8ERxGmIqBic/T4ddnIyNEBI/AAAAAAAAAZM/RxnLFgfojtw/s640/blogger-image--709278587.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-8ERxGmIqBic/T4ddnIyNEBI/AAAAAAAAAZM/RxnLFgfojtw/s640/blogger-image--709278587.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-WHCry2ka21s/T4ddne01B-I/AAAAAAAAAZU/u45g-fqaP3w/s640/blogger-image--1537643096.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-WHCry2ka21s/T4ddne01B-I/AAAAAAAAAZU/u45g-fqaP3w/s640/blogger-image--1537643096.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-UQCgqjCsVDo/T4ddoPeUxrI/AAAAAAAAAZc/hWz5PtI_6gk/s640/blogger-image--1673506763.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-UQCgqjCsVDo/T4ddoPeUxrI/AAAAAAAAAZc/hWz5PtI_6gk/s640/blogger-image--1673506763.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-thYJxnVWo0c/T4ddoWRqTEI/AAAAAAAAAZk/tRtD1QyYZYM/s640/blogger-image-1221015968.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-thYJxnVWo0c/T4ddoWRqTEI/AAAAAAAAAZk/tRtD1QyYZYM/s640/blogger-image-1221015968.jpg" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-44100637424757564412012-04-12T15:49:00.001-07:002012-04-12T15:49:58.238-07:00<div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-TdAgz3I-fsc/T4dcBysZNUI/AAAAAAAAAX0/HldEUSRj6OE/s640/blogger-image-179439242.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-TdAgz3I-fsc/T4dcBysZNUI/AAAAAAAAAX0/HldEUSRj6OE/s640/blogger-image-179439242.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-eSrgzDe2q8E/T4dcCHbumyI/AAAAAAAAAX8/vV6bIviBZ4k/s640/blogger-image-1723286734.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-eSrgzDe2q8E/T4dcCHbumyI/AAAAAAAAAX8/vV6bIviBZ4k/s640/blogger-image-1723286734.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-Si_nrJHN9kE/T4dcClcfUqI/AAAAAAAAAYE/FPfLRFQVo1o/s640/blogger-image-2032759503.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-Si_nrJHN9kE/T4dcClcfUqI/AAAAAAAAAYE/FPfLRFQVo1o/s640/blogger-image-2032759503.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-tGi2_b2Cxk8/T4dcDFrlT3I/AAAAAAAAAYM/FxYMFIrAI2w/s640/blogger-image--720132498.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-tGi2_b2Cxk8/T4dcDFrlT3I/AAAAAAAAAYM/FxYMFIrAI2w/s640/blogger-image--720132498.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-jfv_MtHgyUs/T4dcDnmGO9I/AAAAAAAAAYU/MIa1Sd3uWtA/s640/blogger-image--1164549011.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-jfv_MtHgyUs/T4dcDnmGO9I/AAAAAAAAAYU/MIa1Sd3uWtA/s640/blogger-image--1164549011.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-OIFtmgoH_RM/T4dcENi6NuI/AAAAAAAAAYc/Y-uFmm-nvSw/s640/blogger-image-695056293.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-OIFtmgoH_RM/T4dcENi6NuI/AAAAAAAAAYc/Y-uFmm-nvSw/s640/blogger-image-695056293.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-SfjHcncg6wc/T4dcEg2yKEI/AAAAAAAAAYk/A9G0uxXzN8g/s640/blogger-image--2128612361.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-SfjHcncg6wc/T4dcEg2yKEI/AAAAAAAAAYk/A9G0uxXzN8g/s640/blogger-image--2128612361.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-65OLm9Z3dto/T4dcFB6FyfI/AAAAAAAAAYs/_H_nj50--UA/s640/blogger-image--1339640930.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-65OLm9Z3dto/T4dcFB6FyfI/AAAAAAAAAYs/_H_nj50--UA/s640/blogger-image--1339640930.jpg" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-3275433557206282842012-04-12T15:12:00.001-07:002012-04-12T15:12:42.907-07:00Pictures!<div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-mA1I7eO_2XA/T4dTUEBwdMI/AAAAAAAAAXE/_SUpt5yf_4c/s640/blogger-image-1848088320.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-mA1I7eO_2XA/T4dTUEBwdMI/AAAAAAAAAXE/_SUpt5yf_4c/s640/blogger-image-1848088320.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh6.googleusercontent.com/-hmE3gk4GTmk/T4dTUmaIzxI/AAAAAAAAAXI/9zCfGHo8Zow/s640/blogger-image--484346783.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh6.googleusercontent.com/-hmE3gk4GTmk/T4dTUmaIzxI/AAAAAAAAAXI/9zCfGHo8Zow/s640/blogger-image--484346783.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-FevgJn3lUsE/T4dTU75uHZI/AAAAAAAAAXQ/Z50HgSxPRhM/s640/blogger-image--1715127405.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-FevgJn3lUsE/T4dTU75uHZI/AAAAAAAAAXQ/Z50HgSxPRhM/s640/blogger-image--1715127405.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/-zK2t9N2Sh8g/T4dTVZDIC9I/AAAAAAAAAXc/T5ga4ykrRi0/s640/blogger-image--807872112.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/-zK2t9N2Sh8g/T4dTVZDIC9I/AAAAAAAAAXc/T5ga4ykrRi0/s640/blogger-image--807872112.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-Mqz4tuGLa7E/T4dTV9ZczkI/AAAAAAAAAXk/TFCcPJ4OjVM/s640/blogger-image-714011148.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-Mqz4tuGLa7E/T4dTV9ZczkI/AAAAAAAAAXk/TFCcPJ4OjVM/s640/blogger-image-714011148.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-IVkl1r1SPzg/T4dTWMMY7zI/AAAAAAAAAXs/ppdbEFJaEMw/s640/blogger-image--794086851.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-IVkl1r1SPzg/T4dTWMMY7zI/AAAAAAAAAXs/ppdbEFJaEMw/s640/blogger-image--794086851.jpg" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-21926291571303660832012-04-06T00:35:00.001-07:002012-04-06T00:35:49.349-07:00Some pictures of Conner<div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-baQlomyuqCo/T36cxVIXh9I/AAAAAAAAAWI/CwDiSd_Mzwk/s640/blogger-image--1713074257.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-baQlomyuqCo/T36cxVIXh9I/AAAAAAAAAWI/CwDiSd_Mzwk/s640/blogger-image--1713074257.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-hlg7zh7F__A/T36cxiaiPpI/AAAAAAAAAWM/WDAUmNNRsDM/s640/blogger-image-1016452814.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-hlg7zh7F__A/T36cxiaiPpI/AAAAAAAAAWM/WDAUmNNRsDM/s640/blogger-image-1016452814.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-n3_Mma3khqQ/T36cx0nBWKI/AAAAAAAAAWU/ze8DZt4jVhI/s640/blogger-image-434362514.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-n3_Mma3khqQ/T36cx0nBWKI/AAAAAAAAAWU/ze8DZt4jVhI/s640/blogger-image-434362514.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh3.googleusercontent.com/-Dyd4PdKmnmY/T36cyE3MvMI/AAAAAAAAAWg/7_xby0_4pno/s640/blogger-image-678372195.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh3.googleusercontent.com/-Dyd4PdKmnmY/T36cyE3MvMI/AAAAAAAAAWg/7_xby0_4pno/s640/blogger-image-678372195.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh5.googleusercontent.com/--3297Et-EN4/T36c0YAxlNI/AAAAAAAAAWo/8k3l07N3DOY/s640/blogger-image-168338634.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh5.googleusercontent.com/--3297Et-EN4/T36c0YAxlNI/AAAAAAAAAWo/8k3l07N3DOY/s640/blogger-image-168338634.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-jfJIFdQsBW0/T36c0qP7t_I/AAAAAAAAAWw/6Ya6F3TgKEo/s640/blogger-image-1877313535.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-jfJIFdQsBW0/T36c0qP7t_I/AAAAAAAAAWw/6Ya6F3TgKEo/s640/blogger-image-1877313535.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://lh4.googleusercontent.com/-s_HKYHeLYE4/T36c1OZ9jAI/AAAAAAAAAW4/-0T4ycOlEdg/s640/blogger-image-655635929.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-s_HKYHeLYE4/T36c1OZ9jAI/AAAAAAAAAW4/-0T4ycOlEdg/s640/blogger-image-655635929.jpg" /></a></div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-1767984830377529201.post-38463922012010950962012-02-14T11:41:00.001-08:002012-02-14T11:41:13.946-08:00Rest in Peace sweet Adam Sallee<div><p>Adam you have such an important job up there in Heaven... That's why God needed you home so soon.  He needed only the best of the best of Angels to watch over our Angels here on Earth... You are missed sweet boy....you captured my heart the day I first met you... I love ya little guy! </p>
<p>He was a sweet sweet boy. He was born just 5 days after Conner. I remember when I first met him, those big blue eyes and his uncertain but happy smile upon his face.  Beeping monitor in the background because he was happily kicking his cute little feet and the pulse ox wasnt agreeing with him. I don't have a lot of memories with Adam except the many times I walked by his hospital room and if he was awake I would stand in the door way and make a fool of myself in front of all the nurses just to see his big blue eyes light up and see that big adorable grin upon his face. I would always take the long way around to Conners room so I could pop my head in on Adam.... I didn't care if all the new nurses who didn't know me would question me stopping by his room.... I never went in unless his mom was there with him in the room... I kind of regret that.  :-(</p>
<p>Adam had Hypoplastic Left Heart Syndrome with one other thing but I'm not sure of the name.  He spent all but two months of his life in the hospital. He ended up having to have a heart transplant in September 2011. I was him the day before they got the news that he had recieved and Angels heart.  The next day his mom Casey called me to tell me the news I screamed and jumped up and down and to this day when Casey tells that story she says "it was like you won the lottery" lol I immediately said a prayer for the donors family. Then I cried.  Soon after his transplant Adams aorta ruptured and he was bleeding out.  The doctors were sure if he was going to make it through.  Adam survirved that!  He battled many cdiff infections.  He was a strong boy, who no... He didn't lose his battle with CHD he won his battle.... He kicked CHDs butt!   He touched so many lives and I will always tell his story!</p>
<p>On the evening of January 28,2012 he passed away in his mothers arms.   He has an older sister named Ella so please keep her along with his mother Casey and his father Jason in your prayers.  On February 11,2012 Adams service was held and it was a beautiful service filled with laughter and smiles.  The way Adam will always be remember.  I captured a few photos of his service while I was there and with his mothers permission Im sharing them with you....</p>
<p>Remember to spread awareness about Congenital Heart Defects.  They are the number one birth defect and there are over 40 known defects.  Nine out of ten heart defects can be detected at birth with a pulse ox test so make sure to tell everyone you know! </p>
<p>To donate in Adams honor go to </p>
<p>WWW.childrensheartfoundation.org and click donate on the right hand side. </p>
<br/><img src='http://lh4.ggpht.com/-0KWCVbWzmqk/Tzq4GB8hOYI/AAAAAAAAAVg/Cm59zmN5UOA/IMAG0172.png' /><br/><img src='http://lh5.ggpht.com/-VWhNLpn6nPk/Tzq4pn507UI/AAAAAAAAAVo/7TkqfMfTzl8/IMAG0171.png' /><br/><img src='http://lh3.ggpht.com/-QTJhIVnKvbo/Tzq4vi_GDBI/AAAAAAAAAVw/_gMtZp0R6jM/IMAG0170.png' /><br/><img src='http://lh5.ggpht.com/-oovw5EKK-lU/Tzq4xgQki1I/AAAAAAAAAV4/_dyWsM20f1Y/IMAG0173.png' /><br/><img src='http://lh3.ggpht.com/-L0TXVJl5DPY/Tzq42NGc5LI/AAAAAAAAAWA/t4lubtmLLjk/IMAG0169.png' /></div>Unknownnoreply@blogger.com1Woods Creek, Woods Creek47.87871 -121.89845tag:blogger.com,1999:blog-1767984830377529201.post-25627042031064670002012-02-14T00:05:00.001-08:002012-02-14T00:05:46.061-08:00Pictures :-)<div><br/><img src='http://lh4.ggpht.com/-diIdzZix_S8/TzoAYiw36EI/AAAAAAAAAPo/GXpjwJybuPw/IMAG0040.png' /><br/><img src='http://lh6.ggpht.com/-pVVLIBGKJ-Y/TzoAesIJShI/AAAAAAAAAPw/0EFOuiDJRwU/IMAG0819.png' /><br/><img src='http://lh5.ggpht.com/-l3yVD9JM470/TzoAmNLO6YI/AAAAAAAAAP4/0_YGEZSslX8/IMAG0768.png' /><br/><img src='http://lh6.ggpht.com/-Fogkpz0KvFo/TzoVhvOlixI/AAAAAAAAARI/UfUCXqoNiGQ/IMAG0810.png' /><br/><img src='http://lh5.ggpht.com/-cgJiButF0ME/TzoViyrfg_I/AAAAAAAAARQ/wqM3IixqoBE/IMAG0828.png' /><br/><img src='http://lh4.ggpht.com/-8rJI21nUqno/TzoVkuRLduI/AAAAAAAAARY/8O8Nun1-Wus/IMAG0773.png' /><br/><img src='http://lh3.ggpht.com/-uDR2rNsHNkU/TzoVoQ9zP7I/AAAAAAAAARg/1stYaWuyUbg/IMAG0831.png' /><br/><img src='http://lh5.ggpht.com/-t_JWKomOwLM/TzoVp9HD_QI/AAAAAAAAARo/RA9hOBPGpWc/IMAG0774.png' /><br/><img src='http://lh6.ggpht.com/-HswR8HsEUqw/TzoVrOwrSCI/AAAAAAAAARw/vjLNWjCn3vY/IMAG0736.png' /><br/><img src='http://lh5.ggpht.com/-6YLa2CHPXGs/TzoVtzEX_3I/AAAAAAAAAR4/cOYA-VVfCMY/IMAG0772.png' /><br/><img src='http://lh6.ggpht.com/-rlQWlWTkoDE/TzoVvrWVP3I/AAAAAAAAASA/Gkh5-DL3XmU/IMAG0802.png' /><br/><img src='http://lh3.ggpht.com/-2CKP5eOS6y4/TzoVxp8Cw8I/AAAAAAAAASI/AIJyUK09yJQ/IMAG0785.png' /><br/><img src='http://lh3.ggpht.com/-11nyg9f-9Qs/TzoV0KMQH6I/AAAAAAAAASQ/3IsXN27-5Zw/IMAG0778.png' /></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-83785278937332841722012-01-19T14:42:00.000-08:002012-01-19T14:42:12.259-08:00January 19, 2012I'm not sure where to start... <div><br />
</div><div><br />
</div><div><br />
</div><div>I guess here's a good place.... Sometimes I wonder if other parents of children with special needs feel and think the way I do.... every Cardiology appointment Im honestly 100% hopeful that they will look at me and say "Conner is all better, he is cured!! His heart is perfect and he's a healthy, playful, and will live a long life!" I honestly with all my being hope with all my might that they will say that to me. I <i>know</i> they wont, but day dreaming on the way down to his appointment kind of gives me a little more hope. Until they say.... what they said today...Based on the ECHO today, they found that his pressures are in the 70s, they were in the 50s six months ago. He 80-90% systemic vs six months ago he was at around 40%. This means that his conduit is narrowing and its narrowing by the valve. This means that they most likely cannot fix it with a stint (they can but it would make the valve either leaky or leave it completely open. I think that would in turn cause pulmonary hypertension), so the hope is to fix it by ballooning it. If they cannot fix it in the cath lab (by stinting or ballooning) then he will require open heart surgery this year. </div><div><br />
</div><div>Conner has continued to hold his own and do amazing at showing the world how c<i>ourageous</i> he really is. </div><div><br />
</div><div><br />
</div>Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-1767984830377529201.post-69408285745849401402012-01-12T20:07:00.000-08:002012-01-12T20:07:23.743-08:00Your Scar ( I got this poem from another heart mom)<div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/-WrsdGJiy2s4/Tw-tRMRpXSI/AAAAAAAAAPM/FIFWrV9amGE/s1600/scar.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://2.bp.blogspot.com/-WrsdGJiy2s4/Tw-tRMRpXSI/AAAAAAAAAPM/FIFWrV9amGE/s320/scar.jpg" width="212" /></a></div><div style="background-color: white; text-align: center;"></div><span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Sometimes I have those "moments",</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">When I think...life's just not fair,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Then I think of all you've been through,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">And I see the scar you bear.</span></span><br />
<br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">A faded line right down your chest,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Made with such careful precision,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">We wanted you to have a chance,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Could there be any other decision?</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">And so I trace that "perfect" scar,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Made with the utmost care,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">And I realize there is purpose,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Behind this scar you wear.</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">What have you taught us?</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">You've taught us how to face a storm,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(Some things are just out of our hands)</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Life has no handy guidebook,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(Things don't always go as you've planned)</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">People come into our lives,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(Sometimes it is just for a season)</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">But God brings them into our lives,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(And I know that He must have a reason)</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Normal, uneventful days,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(The kind that we always hoped for)</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">These are the days I say, "Wow God",</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">We just never know what lies in store.</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">If I can place a feeding tube,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Without even getting distraught,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Perhaps, maybe, I might be...</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Much stronger than I thought.</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">It's okay to be afraid,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">And it's alright to cry,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">It's okay to feel lost sometimes,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">It's even okay to ask...why?</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">You face life with courage,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(Knowing God set you apart)</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Every little thing you do,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">You do with all of your heart.</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">No crystal ball exists for us,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(To see us through each strife)</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">We only have one wish for you...</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">An ordinary life.</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">You've taught us to love one another,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">(Helping eachother to cope)</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">You've taught us compassion for others,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">You've taught us to never lose hope.</span></span><br />
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<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">You already have quite a story,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Which you can someday share,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">And I can see it's beauty,</span></span><br />
<span style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif;"><span style="font-size: 11px; line-height: 16px;">Behind that scar you wear.</span></span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-81295491338522394542012-01-05T20:10:00.000-08:002012-01-05T20:10:16.959-08:00January 5, 2011Where to begin....<br />
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We are all moved in and settled into our new place! We love it here! Conner fell sick on November 28...after about two weeks of fevers, several doctors visits, one overnight stay in Childrens Hospital and one more visit to the ER showed that he was having runs of EAT because of the Rhinovirus yep you read that correctly! A simple cold virus triggered his EAT...And nope he hasnt outgrown it.... sigh. His heart rate got to 240. At some point in there it was determined that Conner had MONO.... I know right!??? Well the Monospot test came back positive but the antibodies came back negative. He fevers for 2 weeks straight and then fevers here and there for another two weeks. He is so much better now!<br />
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Christmas was amazing! Auntie Crystal and Uncle Dave came over and we had a visit for Auntie Sarah too! <br />
New Years was simple but fun! :) Leo and Alex really enjoyed their two weeks off but were excited to go back to school too! <br />
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I will update more later :) <br />
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Until then hugs!<br />
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Also could everyone remember to say prayers for all the little ones in the hospitals...the parents by their bedsides... and we must not forget all the little Angels... and their parents hugging their little ones with their hearts....<br />
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Heart Hugs,<br />
<br />
JessicaUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-31349771470999327242011-11-30T22:44:00.000-08:002011-11-30T22:44:47.203-08:0011/30/11I thought it was time for an update! I hope everyone had a wonderful Thankgiving Holiday! So much to tell! So much has happened in two weeks! Hmmm where to start... well we are still battling colds, and sinus infections but we will get better soon... these past few days have better rather rough for Conner. He has been battling a fever ranging from 101-103 nearly 104. Yesterday he had a blue spell, his extremities were cold and dusky as were his lips. Needless to say, I rushed him to his doctor. Turns out it was because he was cold and his fever after being gone all day came back with a vengeance at 102. His oxygen saturation levels were fine.... thankfully! But that was a super scary moment bringing me, for a few minutes, back in time. Once his amazing pediatrician Dr. M and her awesome side kick Aja determined that Conner was okay and just needed a little motrin I finally exhaled and had a minor.... I repeat minor meltdown. Conner has since then broken into a rash of sorts... if its not gone by tomorrow I was instructed by his homecare nurse to notify his doctor. On the bright side of things, Conner his walking now! Well 95% of the time he his! He is a determined little guy too! If he decides he is going to walk across the room and his makes it 3/4 of the way and falls... guess what he does!? He fusses for a minute, crawls back to his starting point and tries it again! He tries until he succeeds... He loves singing "Itsy bitsy spider" too! He cant quiet say the words yet but he tries! He attempts that hand gestures too! Its super adorable! He has started dancing and giving high fives! He says "thank you" now too! He has said "Where is it" and "I see it" his favorite one is "Whats that?". Earlier this evening he was sitting on his knees next to the couch, playing with a car saying "vroom vroom vroom" Im so thankful for all these milestones, because there was a time when we werent too sure if he would ever be able to meet any of these milestones! He is surely amazing! He and his older brothers are SUPER close, its clear to anyone just how much my boys love one another! Granted there are times when Leo and Alex argue and bicker and fight.... seeing as Leo is 9 going on 16 and is very into "this belongs to me". <em>Ah the joys of independence</em>.... he calls himself a "Tween" WHAT on Gods green earth is a TWEEN you may ask? Yeah... I know... I asked the same thing and in the words of my 9 year old....eh hem....I mean my<em> tween</em>... "its when you arent a teenager yet but not a kid anymore"......<em>I KNOW RIGHT!</em> Makes ya feel old and SO behind on times. <insert nervous chuckle here> He is in the phase of "Yes, mom girl cooties ARE real! Every girl has them!", "thats my spot", "<em>sigh</em> can you PLEASE not stare at me" and the "<em>SIGH.....</em>nothing, nevermind" Reminds me of me when I was 16 going on 25 and I thought I knew everything. Im in for it... I know. But I love that boy with all of my being! Oh Alex my sweet little character.... he is LOVING kindergarten! He is learning to READ I cant believe it! In October I volunteered in his classroom but since the end of October I have been battling one cold after another and these arent little colds, they are knock you on rear end kinds of colds! I am determined to go to his class tomorrow and volunteer. Im not 100% but nothing a little cold medicine cant fix! I have been some what out of comission for the last few weeks but Im getting there! Alex is getting taller and losing all his baby chubbers :-( He loves to dance and sing and make people laugh! When he brought home his Thanksgiving art project, in his handwriting it said four things he is thankful for and in this order he wrote 1.Food 2. My Mom 3. My dog and 4. My hows (I think he meant house)... I made the list! <em>Im doing something right! </em><br />
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These next few weeks are going to be hectic and filled with chaos.... we are moving, Alex' birthday is coming up (birthday party on moving day) should be interesting.... boy when I plan something, I plan BIG. Ugh... LOL. Well we will see how it goes! Then organizing our new place and Christmas... fun stuff! Time to get into gear! <br />
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Well if Im not able to get on here before Christmas....MERRY CHRISTMAS!!!<br />
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Smiles and Hugs, <br />
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JessicaUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-1767984830377529201.post-36589090813837052382011-11-14T10:16:00.001-08:002011-11-14T10:16:51.271-08:00Love, ConnerHi Guys! Its me Conner, dont tell mom I figured out the computer! I wanted to let you all know that Im doing GREAT! Im so close to walking! I also wanted to let you know that Im doing a fundraiser for Congenital Heart Defects and Heterotaxy through Scentsy! ANYTHING YOU OR FRIENDS AND FAMILY PURCHASE WILL HELP KIDS WITH CHD AND HETEROTAXY! So when you smell that sweet smell of lavender, vanilla, or whatever you scent you choose it will be a friendly reminder that you are helping one of my friends, who like me, were born with a broken heart! ALL of the the consultants profits will go towards The Heterotaxy Network and CHD research and funding...100% of her profits!! She doesnt do this to earn extra money for herself... she does this to help kids like me! Just click this link <a href="https://thn.scentsy.us/Home">https://thn.scentsy.us/Home</a> (or copy and paste into your browser) and then click my mommys name Jessica Lewellen and have fun shopping! If you purchase the Scentsy Sasha Bear, like the one I have,proceeds go towards Ronald McDonald house to help families in need when they are at Childrens Hospital with their loved one. I hear the plug in warmers are GREAT for bathrooms! If you need replacement parts or lightbulbs for your warmers they have those too! Send this invite to your family and all your friends too! Christmas is just around the corner wouldnt it be great to purchase a gift and give it to your friend or family member knowing that, that very gift could be the reason a little child like me feels better today?<br />
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Even if you cant purchase any items today, please forward this email to all your friends and family... my goal is 500.00 raised by December 1, 2011....... all it takes is to purchase an item that will fill your home with any wonderful scent of your choice! Unknownnoreply@blogger.com0